Salom, Rafael; Aras, Luís Miguel; Piñero, Jessica; Duñabeitia, Jon Andoni (Journal article; Tidsskriftartikkel; Peer reviewed, 2023-08-08)
Caring for children with developmental and epileptic encephalopathies (DEE) can be challenging for
primary caregivers due to the complexity of the condition and the need to provide ongoing care. This
has a psychosocial impact on their quality of life, including increased stress, anxiety, and depression,
as well as an impact on their support network, work, and relationship with the afected child. ...